Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder

​

Author(s): Claire Smith

Edited/reviewed by: Dr. Alan Hakim, Prof. Suranjith Seneviratne, Dr. Lesley Kavi and Dr. Pradeep chopra
ISBN: 978-1-9997300-0-0
Format: A4. This book has been spiral bound to make it more user friendly for those with hypermobilie hands; spiral binding allows an open book to fold back upon itself, or to remain open on a flat surface or in a book stand.
Language: English
Publishers: Redcliff-House Publications
Publication Date: 2017, Version 1.0
Pages: 188
Product dimensions: A4 i.e. 30 x 21 cm

​

Book Overview:

Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified 'hypermobile Ehlers-Danlos syndrome' and 'hypermobility spectrum disorder' (previously known as 'Ehlers-Danlos hypermobility type' and 'joint hypermobility syndrome', respectively).

The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more. 

From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management - if you ever wished that you could find all of the information you need, together, in one place...Look no further!

​

Reviews for this book:

‘Wow, this is incredibly helpful. I was diagnosed several years ago and I still didn't know about at least half of this. It explains SO much!’

Patient reviewer 

​

'I recently purchased a copy of your new book 'Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder' and am delighted with it. The information is life-changing for me, helping me to a diagnosis of a health condition I have suffered from for years.’

Patient reviewer

​

‘You must publish this book Claire and as soon as possible. I will be recommending your book to my patients - very well done.’ 

Prof. Seneviratne - Director of the Centre for Mast Cell Disorders, and Consultant in Clinical Immunology and Allergy, UCL

​

‘Best book I have read on EDS (and read lots!!). So glad that MCAD and PoTS are in there too. It was like reading a book about my son.’
Purchaser feedback

​

‘I commend this terrific book to anyone wishing to learn more about these conditions... This is very much a book for patients, carers, and health and social care colleagues alike.’
Dr. Alan Hakim - Consultant Rheumatologist and Chief Medical Advisor to the Hypermobility Syndromes Association

​

'I have just received your book. I would like to sincerely compliment you on a job well done. I can imagine the commitment and effort that has gone into writing it. This book was badly needed and is excellently researched and beautifully written. I will certainly recommend your book to all my patients with hEDS and HSD and medical professionals who treat them.' 
Dr Deepak Sharan, Medical Director, RECOUP Neuromusculoskeletal Rehabilitation Centre, India

​

‘Received my copy and I am in shock at how well written and to the point this book is. It’s like my autobiography of medical issues past and present, and medical care and lack of care.’
Purchaser feedback

​

'[This book] is unbelievably thorough, detailed, and up to date...’ ‘...[It] is really going to educate and enlighten a lot of people. Now if only we could get medical schools to use it as a text for a course!’

Dr Alan Pocinki FACP. Clinician working with patients with EDS and related conditions

​