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Links between hEDS/HSD and anxiety

A closer look at some of the remarkable research that is helping to provide answers

doctor sitting at a desk, writing a medical report. Linked to a blog article about medical language that can disempower patients

Medical words can hurt!

Could the relationship between patients and health care staff be improved with some simple rephrasing

The medical approach from a patient's perspective  An ongoing search for explanation, validation and a structured treatment pathway.

The medical approach from a patient's perspective

An ongoing search for explanation, validation and a structured treatment pathway.

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How it feels

The impact of our child's frequent injuries have on family life

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Hospital rehabilitation programmes for children

One size does not fit all

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