Ehlers-Danlos / Hypermobility Spectrum Disorder Centres for Patient Referral Uk

Dr Kevin Lasko - Areas of specialist interest include: cervical spine Instability, Autonomic Dysfunction , postural orthostatic tacycharida and movement disorders

Email: lasko.hemispheres@gmail.com

https://drkevinlasko.com/

Dentistry (listed in alphabetical order):

JNT Dental - Based in Richmond Virginia (USA), the team at JNT Dental say: 'We have a large patient base that have hypermobility disorders'. From craniofacial pain, temporomandibular joint disorders (TMD) and sleep apnea management to top-notch dental care, our team at JNT Dental provides you with access to some of the most cutting-edge diagnostic tools and treatment options available today.

https://www.jntdental.com/2018/09/10/hypermobility/

Mitakides - Based in Dayton, Ohio, the practice say 'Dr. Mitakides is dedicated to complete care for his patients, including treatment of craniofacial pain and TMJ disorder in the Ehlers-Danlos Syndrome (EDS) patient. He is on the international board of The American Academy of Craniofacial Pain, and serves on the Medical Board of the international Ehlers-Danlos Society.'

http://mitakides.com

Oral Surgery Scotland (Dr Audrey Kershaw)
Dundee Westhill, Glasgow, Lockerbie, Elgin, Forfar
Scotland
Tayside
DD2 1JP
United Kingdom

www.oralsurgery.scot

The Dental Barn - Based in East Sussex (UK), the team at the Dental Barn say: 'The best way that EDS patients are treated is with understanding, empathy and good communication with patients, families and dental professionals. If you would like a free coffee and a chat to talk about how we can help you with your EDS and dental treatment just call us on 01323 325397.'

https://thedentalbarn.co.uk/ehlers-danlos-syndrome-east-sussex/

Dermatology (listed in alphabetical order):

Dr Nigel Burrows MD FRCP

Dermatology

Addenbrooke’s Hospital

nigel.burrows@addenbrookes.nhs.uk

Gastroenterology (listed in alphabetical order):

Professor Qasim Aziz

Professor of Neurogastroenterology

Gastrointestinal symptoms associated with HSD/EDS and PoTS (From age 16)

Clinics at The Royal London Hospital London and St Bartholomew's Hospital London

thephysiciansclinic.co.uk/physicians/professor-qasim-aziz/

General Practitioners (listed in alphabetical order):

Dr Kate Barnes

10 Harley Street

Marylebone

London

W1G 9PF

https://drkatebarnes.co.uk

https://drkatebarnes.co.uk/ehlers-danlos-syndrome-pandoras-box/

Sueanne Baddour, DNP, APRN, FNP
Nurse Practitioner
Well~Being Hypermobility & EDS Virtual Care
United States
www.EDSvirtualcare.com
info@edsvirtualcare.com

The Grove Medical Practice GP Surgery

81 Danemead Grove,
Northolt,
Middlesex,
UB5 4NY

https://www.thegrovemedicalpractice.nhs.uk/conditions/ehlers-danlos-syndromes/

Hypnotherapy (listed in alphabetical order):

Kim Claydon Hypnotherapist (and hEDS/HSD Expert Patient)

Positive Solution Hypnotherapy

Hypnotherapy to help you cope better with hEDS/HSD related pain and even reduce it.

kim@positivesolutionhypnotherapy.com

Massage Therapy (listed in alphabetical order):

Bristol Massage Therapy - Victoria Armstrong says: 'Like much of my continuous professional development, my introduction to this complex world of hypermobile conditions [and the benefits that massage therapy can provide to people suffering with a hypermobility syndrome] was through a client. A lady in her mid-20s, she has had symptomatic hypermobility syndrome all her life, and has become an expert on her symptoms...' 'Working with this client, I have learnt a lot about hypermobility syndrome and am incredibly grateful for her encouragement, guidance and patience whilst I have been growing as a practitioner.' '...it turns out I don’t just have one client with some form of hypermobility, I have several.

https://www.bristolmassagetherapy.co.uk/tips-articles/massage-and-hypermobility

Occupational therapy (listed in alphabetical order):

Abi Johnson

Occupational Therapist,

Brentwood, Essex

Particular interests in coordination, handwriting and anxiety.

Email; abi@occupationaltherapyessex.co.uk

Website; www.occupationaltherapyessex.co.uk

Jo Southall

Occupational Therapist and EDS Expert Patient.

Jo offers a range of services via video chat so you can reach her, as an OT, without the hassle of leaving your home - just 30 minute sessions via Skype or Google Hangouts. Discuss self-management strategies, devise flare-up plans and more. Jo offers a range of services to suit most budgets. Specialist areas are managing long-term conditions, rare disease advocacy, accessibility, travel, outdoors and creative activities.

All of Jo's services are available worldwide excluding The USA & Canada (Individual appointments start at just £20 per 30 minutes.)

jboccupationaltherapy.co.uk/ot-services/

Orthotics (listed in alphabetical order)

DM Orthotics (offer made to measure dynamic movement orthoses for those with EDS/HSD)

www.dmorthotics.com/case-studies

Osteopathy (listed in alphabetical order)

Essential Osteopathy

Osteopathic clinic

Glasgow, UK

https://www.essentialosteopathy.co.uk/blog/hypermobility-and-osteopathy/

Chew Vally Osteopathic and Therapies Practice (Belinda Eyes)

http://www.chewvalleytherapies.co.uk/2015/08/hyper-mobility-and-hyper-mobility.html

01275 333587

Synergy Osteopathic (Janet Gravener)
23 George St
Cellardyke
Anstruther
Fife
KY10 3AS
United Kingdom

http://www.synergyosteopathic.co.uk

Plympton Osteopathic Centre

Plymouth

www.plymosteoclinic.co.uk

Total Health West Berkshire (Abi Shrapnell, BSc)

Osteopathic Medicine, osteopathy in connective tissue disorders, osteopathy in autonomic dysfunction

Newbury and Wokingham clinics

abi.shrapnell@gmail.com

Zac Laraman

Sports Osteopath

Gaerwen (North Wales)

http://www.zaclaraman.com/zac-laraman/

Pain specialists (listed in alphabetical order)

Richmond Stace

Specialist Pain Physiotherapist & Pain Coach

London and Surrey, UK

www.specialistpainphysio.com/joint-hypermobility/

Marie Wilson

Physiotherapist

Complex Pain Management Therapy, Australia
Chronic and Complex Pain
https://complexpainmanagement.com.au

Linda Bluestein MD

Wisconsin Integrative Pain Specialists, USA

www.wisconsinintegrativepainspecialists.org

Parenting (listed in alphabetical order):

The Wheels on Mum

Danielle Broad - EDS Expert Patient; parent; wheelchair user, journal content contributor and blogger

shares her parenting tips - 'Making the parenting world work for us with a newborn, despite disability'.

Read: Newborn phase

Read: Parenting from my wheelchair.

wheelsonmum.wixsite.com

Mothering Matters - assists women with EDS transitioning from work life to motherhood)

Rachel Fitz-Desorgher

Midwife, infant feeding consultant, active birth teacher and parenting consultant.

Berkshire (UK)

mothering@rachelfitzd.com

Physiotherapy (listed in alphabetical order):

Alison Bartup Physiotherapy

Stockport, UK

0161 440 8970

Louise Cousins

Ash Physiotherapy and Sports Clinic Canterbury, Kent

Canterbury, UK

www.ashphysiotherapy.co.uk/about-us/our-physiotherapists/louise-cousins/

Friel (Lorraine) Physiotherapy

Glasgow, UK

www.facebook.com/frielphysiotherapy/

Private appointments at: thefootandlegclinic.co.uk

Nicole Gipps

SV Sports Therapy

Clinics in Loughton and Harlow (UK)

www.svsportstherapy.com/single-post/2018/09/11/How-sports-therapy-can-help-with-EDS-and-other-musculoskeletal-disorders

Robyn Hickmott

Physiotherapist

Applecross Physiotherapy, Australia

(clinical interest and expertise in hypermobility syndromes in children and adolescents)

www.applecrossphysiotherapy.com.au/robyn-hickmott

Gavin Kelly

Orthopaedic Physiotherapy

Cowen House

North Somerset, UK

www.resolvehealthphysio.co.uk/about-us/gavin-kelly/

Andre Le Leu

Dr Patrick Kiely

St Georges Hospital, UK

https://www.stgeorges.nhs.uk/people/dr-patrick-kiely/

Bsc(Physiology),BPHTY(Physiotherapy), BESS, EUSSER

Complex pain, Orthopedic Rehabilitation, Complex Instability (Upper Limb)

Clinics in London and St Albans

hiphysiomotion.co.uk/

Catherine Nutt

Physiotherapist - Sports medicine, musculoskeletal outpatients

Central Health

The Royal Hospital, UK

www.central-health.com

Jason Parry

Physiotherapist (hypermobility and complex regional pain syndrome)

www.central-health.com/ourpeople/jason-parry/

Physiocure®

Chartered Physiotherapists

Cookridge Hall Health & Fitness in Leeds, UK.

www.physiocure.org.uk

Jane Simmonds, DProf, MA, PGDip, BAppSc, BPE, MCSP, MACP, SFHEA Physiotherapy, Hypermobility, EDS, sports and performing arts injuries, chronic fatigue, pain

Platinum Medical Centre

Wellington Hospital, UK

www.central-health.com/services/hypermobility/index.html

Richmond Stace

Specialist Pain Physiotherapist & Pain Coach

London and Surrey, UK

www.specialistpainphysio.com/joint-hypermobility/

Dawn Thundow

Body Sym

Ramsgate, UK

www.bodysymphysio.co.uk/dawn-thundow-physiotherapist/

Wendy Wagner

Wendy 4 Therapy

Licensed Physical Therapist

Naperville IL (USA)

wendy4therapy@gmail.com

Marie Wilson

Physiotherapist
Chronic and Complex Pain Management, Australia
complexpainmanagement.com.au

Pilates (listed in alphabetical order):

Jenny Adams
Conscious Pilates

Berrow, Somerset
Insta: @ConsciousPilates, Mob: 07896742505

www.consciouspilates.co.uk

Jeannie Di Bon Movement Therapy

London based specialist courses for hypermobility, suitable for all abilities. Plus, online courses to help hypermobile patients develop a strong, stable body in a healthy, safe way.

jeanniedibon.com/services/

Suzanne Martin

Pilates Instructor Trainer

Scoliosis, The Foot, Hypermobility, Assymetry

Lameda, California, USA

info@pilatestherapeutics.com

www.pilatestherapeutics.com

Podiatry (listed in alphabetical order):

Dawn Shailer BScPod, MaDipSW

Podiatrist

Hypermobility syndromes, Aspergers, autism, epilepsy, cerebral palsy

Clinic in Eastboune, UK

www.footcares.co.uk

dawnshailer@hotmail.com

The London Podiatry Centre UK

Advanced dedicated podiatric gait analysis facilities

www.londonpodiatry.com/podiatry/gait-analysis/

Prolotherapy (listed in alphabetical order)

Caring Medical (USA)

Clinics in Illinois and Florida

www.caringmedical.com/prolotherapy-news/prolotherapy-ehlers-danlos-syndrome/

Gloria Tucker, MD
Prolothera/Regnerative Therapy (HEDS/EDS)
California, USA
gloriatuckermd.com/

Psychotherapy

Kim Clayden

Solution Focused Psychotherapist & Clinical Hypnotherapist

https://online-psychotherapist.com

Ring Splints (listed in alphabetical order):

Ring splints by Zomile - create very affordable, contemporary, solid silver ring splints for those in need of finger and thumb stabilisation

ringsplintsbyzomile.co.uk

Rheumatologists

Dr Philip Bull

Consultant Rheumatologist

One Healthcare

Kent, UK

www.onehealthcare.co.uk/consultants/dr-philip-william-bull/

Prof. Rodney Grahame and Prof. Ian Chikanza

The International Arthritis & Hypermobility Centre (IAHC) - Adults

The Harley Street Clinic

16 Devonshire Street,

London W1G 7AF.

www.iahcentre.com or contact The Practice Manager at info@iahcentre.com or by telephone on +44(0)7444 101 381.

Prof. Rodney Grahame and Prof. Ian Chikanza

The International Arthritis & Hypermobility Centre (IAHC) - Children

The Harley Street Clinic

84 Harley Street,

London W1G 7HW.

www.iahcentre.com or contact The Practice Manager at info@iahcentre.com or by telephone on +44(0)7444 101 381.

Alan Hakim MA FRCP (NB/ Currently on a 12 month sabbatical)

Rheumatology, General Medicine

The London Hypermobility Unit, UK

http://www.thelondonhypermobilityunit.co.uk

Dr Hana Kazkaz

The Hypermobility Clinic, Department of Rheumatology

University College London, UK

www.uclh.nhs.uk/OurServices/Consultants/Pages/DrHanadiKazkaz.aspx

Dr Patrick Kiely

Rheumatologist

St Georges Hospital, UK

www.stgeorges.nhs.uk/people/dr-patrick-kiely/

Dr Peter Lanyon

Rheumatlogist Nottingham, UK

finder.bupa.co.uk/Consultant/view/26106/dr_peter_lanyon

Dr Gayatri Mittal MD, PhD, MRCP

Rheumatology

Clinics at Stanmore Hospital, Wellington Hospital, The London Clinic, UK

www.rnoh.nhs.uk/

www.thewellingtonhospital.com/

/www.thelondonclinic.co.uk/

Sleep Clinics (listed in alphabetical order):

The Sleep Service (appointments by medical practitioner referral or 'Choose and Book' only)

Sleep apnoea, restless leg syndrome, snoring etc.,

Liverpool (UK)

https://www.aintreehospital.nhs.uk/our-services/a-z-of-services/sleep-and-ventilation/sleep-service/

Special Educational Needs (SEND)

Pebble Send Support

Macon Court, Crew, CWI, United Kingdom

07849 072762

https://pebble-send-support.business.site

Special Needs Jungle

https://www.specialneedsjungle.com/?s=ehlers+danlos

Upright MRI Centre

Medserena Upright MRI Centre

London, UK

http://www.mri-london.com

Medserena Upright MRI Centre

Manchester, UK

https://www.trulyopenmri.com/manchester-centre/

Further list sources:

Further lists of HSD/hEDS-friendly health care professionals can be found from the sites below (listed in alphabetical order):

A list of health care professionals around the globe is available from the Ehlers Danlos Society:

https://www.ehlers-danlos.com/medical-professionals-directory/

A list of PoTS friendly health care professionals is available from PoTS UK:

http://www.potsuk.org/doctors

A list of hypermobility friendly health care professionals is available from the Hypermobility Syndromes Association:

http://hypermobility.org/help-advice/hms-clinics/

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